Amplifying Patient Voices in Clinical Research through HERN

This presentation will provide an overview of the Health Experience Research Network (HERN), the US chapter of DIPEx International, and the ways in which it utilizes a unique methodology of rigorous qualitative research to understand and disseminate information about people’s experiences with health and health care in the US context. Attendees will learn about: 1. The key principles of the DIPEx methodology, including what makes it different from other qualitative approaches; 2. Completed and ongoing DIPEx projects (called ‘modules’) in the US and how findings are publicly disseminated via the www.healthexpereincesusa.org website, with examples from a recently completed module on veterans’ experiences with traumatic brain injury; 3. Potential uses for DIPEx modules, the development of a qualitative data repository that includes transcripts of interviews available for secondary analysis, and future directions for the US network. Slides https://www.ohsu.edu/sites/default/files/2022-02/OCTRI_PDF_ORF_HERN_2022%2001%2027.pdf

Introductory

Free